Cystic Fibrosis fundraiser Aug. 2

Monday, July 28, 2014

Researchers zeroing in on effective treatment

With renewed anxiety and exhilaration running deep, the Christa Lux family of Cherokee today has a very promising reason to rejoice with the latest news that researchers may be zeroing in on an effective treatment to combat Cystic Fibrosis, the devastating, incurable lung disease Christa has been stricken with since birth.

The magic in all this is evidenced by the fact that Christa's parents, Kevin and Carrie Lux, and their dedicated, caring family, have devoted all 12 years of Christa's young life to raising funds for Cystic Fibrosis research, clinging to the hope that every dollar helps and the next one could be the one breaking through with a cure or effective treatment that would save CF victims' lives.

"The two biggest take-away facts from this report in my view are (1) the medications which just passed the phase 3 clinical trials actually alters the way the involved cells behave rather than just treating symptoms," explained Carrie. "This is the novel part because up until now, treating CF has been all about symptom management; and (2) this is a drug that will potentially help around 80% of the CF population.

"For us personally, we are hoping that it is a game changer in Christa's life. For 12 years now we've asked family, friends and community members to rally around this cause and help support this very research. It feels like a return on our investment today!"

The Luxes will continue their annual fundraising efforts through their "Life & Breath" 1K and 5K trail run/walk, and for the first time a bike ride with riders choosing between a 20-mile and 40-mile route.

The event is scheduled for Saturday, August 2, at the Cherokee Mental health Institute grounds. Check-in and T-shirt pick-up are at 8:30 a.m. and the 1K and 5K and bike ride will begin at 9 a.m.

The 1K is a paved run/walk for walkers, joggers, strollers, kids of all ages with bikes and trikes. The 5K will utilize the scenic MHI trail route. The bike ride will take C38 to Marcus where the Pizza Ranch will serve a breakfast buffet for the riders (included with registration). There will be a rest and cool down and the return to Cherokee for the full 40 mile route, or riders can opt for transportation provided back to Cherokee.

Entry fees before July 20 save $5 each and are $20 for adults and $12 for students. Entry fees after July 20 and on the day of the event are $25 adults and $17 students, with all proceeds benefiting CF research.

"I hope that everyone who has supported us in the past and contributed to the CFF feels a little pride in knowing that they have had a hand in making this new medical advancement a reality," added Carrie. "We simply could not have done any of this without the support of the wonderful people in our communities.

"And we're not done until we totally defeat this terrible disease that strikes our children."

Respond to this story

Posting a comment requires free registration: